Real MS Stories, From REAL Patients

Lindsey Schwier- 29

18 when she first started to notice something wasn’t right with her body. Being so young, Lindsey shrugged it off as lack of sleep. She suffered for quite a while with neck pain and episodes that she called “panic attacks”. After she had her daughter at 23, Lindsey woke up one morning to extreme eye pain in her right eye. A few days later, she went to the ER after she lost all vision in that eye, and she felt as though her brain was scrambled. She was scared to death as she could only think of one thing- a stoke. All tests came back negative, and the doctors told her to see an eye doctor. When she saw the eye doctor, she examined Lindsey’s eye and diagnosed her with optic neuritis– the inflammation on the optic nerve. Lindsey was in shock and terrified. That was the first time anyone asked Lindsey if she had also been feeling numb or tingly. Lindsey told the doctor her symptoms and she ultimately dismissed it as a sinus infection.

At the age of 28 after Lindsey’s son was born, her eye flared up and it didn’t go away. A lot of times her symptoms would flare up in the heat and go away after some time. This time Lindsey saw an eye specialist who found her symptoms to be troubling. The eye specialist referred her to a neurologist and Lindsey had her first MRI. Lindsey was finally getting some answers. The MRI revealed horrific results- 6 lesions on Lindsey’s brain and 2 on her cervical spinal cord. Lindsey said she was heartbroken. The term MS had been lingering in her head for years now she was being told that was in fact what she had.

Patient 2- 16

Was 11 when she had her first symptoms, she had bad migraines where she would lose vision in the left side of both eyes. She would get sharp stabbing pains in the back of her head, she went to her doctor where she was sent straight to the hospital, where they told her to take migraine medication, and sent the patient on her way. So around a year later the patient then went back after the head pain had been worse, at school. She was rushed to the hospital and had an MRI, but the doctor dismissed it again until she was 14. Until her whole left body became progressively numb and she became concerned. She told her parents and she was rushed for MRI scans, where they found 10 lesions on her brain, 1 around her neck and 1 on her lower back. The doctors then straight away said I’m sorry they allowed it to get this bad when comparing with her previous scans and that they would do some blood tests but it is Multiple Sclerosis. The patient was then transferred to a more senior neurologist and was there was nothing they could do for the symptoms she had because they are now permanent lesions. The patient has now started a DMT and is hoping to make her way up to a more effective ones to hopefully halt progression as she has already had another relapse in November and shes only now 16. The patient is now left with permeant at the moment left side of the body altered sensation, back pain, neck pain, and migraines.

Matthew Embry-29

Has had MS for 20 years, he has traveled the world trying to find answers about MS. Matt does not take DMTs, he had the CCSVI (Chronic cerebral-spinal venous insufficiency) procedure. He keeps his MS in control by taking the right amounts of vitamin D, Omega 3 essential fatty acids, Calcium, Magnesium, Probiotics, Vitamin A, Vitamin B Complex, Vitamin B12, Vitamin C, Vitamin E (Natural), Zinc, Copper, Selenium, Manganese, Iodine. Also, a strict diet with no dairy, you can look that up at Matt is currently symptom free.

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I am 27 years old, this blog is about my journey with Multiple Sclerosis (MS) from the time I got the news when I was 19 until now. I have enjoyed writing it and I hope you enjoy reading it.

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